Yeah, I keep trying to impress on the Covid Conscious folks that this abandonment they’re experiencing is nothing new and they should be seeking solidarity with and learning from the communities who have been dealing with this long before them. Not having a lot of luck.😅
I feel this. There are also a lot of people, both temporarily and permanently disabled, who have just never thought of themselves as disabled and will get very upset if you imply otherwise. I’ve had that experience talking to people about long covid. It’s frustrating.
I have bouquet of hidden disabilities, which don’t in and of themselves prevent me from socially useful labor. But they do impact my ability to work to surplus consistently, and my ability to be a palatable job applicant to a capitalist firm. The violence of capitalism is far and above my primary disability, vastly overshadowing any issues intrinsic to the differences in my body. And it will come for all the “health” chauvinists.
never thought of themselves as disabled and will get very upset if you imply otherwise.
I made it to adulthood before becoming disabled and I immediately began milking that shit. Oh your store isn’t ADA compliant? I’ll totally run things over and knock shit off shelves and dare some petty bourgeois small business owner fuck to do something. I’d key people’s cars who park in handicap spots but I know sometimes people forget, not all disabilities are visible, and people put their sticker in the glove box when it’s not in use.
The two groups of people who don’t necessarily have a disability but are seen by others as disabled are the deaf and neurodivergent.
The two groups of people who don’t necessarily have a disability but are seen by others as disabled are the deaf and neurodivergent.
Why? My hearing is extremely important to me and I can’t imagine what I’d do without it. Sure, people can have fine lives without that sense, but it’s not non-disabling. Neurodivergence can have plenty of upsides but executive dysfunction, time blindness, stimulation needs, interoceptive difficulties, social difficulties etc are definitely disabling. While life under capitalism is bad for everyone, society was especially not made for us.
My hearing is extremely important to me and I can’t imagine what I’d do without it.
There are a lot of hearing people who say this, I believe that Deaf people actually see this type of utterance as an incredibly, outright tediously cliché thing to say… Yet I wonder how many hearing people have actually taken the time to really think about why hearing is important to them personally, and actually attempted to imagine what they would do without their hearing, as opposed to just saying “I can’t imagine” upfront. Now this is obviously not to say that there is anything wrong with valuing one’s own hearing, I’m not exactly going around blasting airhorns into my ears 24/7 desperately trying to make myself deaf — but it is just a fact that a lot of hearing people go around with audist brainworms, that make them not think about d/Deafness soberly, as it were.
If I were to lose my own hearing I honestly think I’d gain just as much as I’d lose — Deaf people actually have a term for this I know, “Deaf Gain” they say.
This being said, obviously there are some number of d/Deaf people who think of (their own) deafness as a disability, just as there are neurodivergent people who think of (their own) neurodivergence as a disability. What sets Deafness apart as a cultural identity separate from disability is the shared history, the passed-down stories and values and traditions, and the languages unique to Deaf people, that make them advocate for themselves as a language minority — but cultural Deafness and medical deafness do not form a perfectly circular Venn diagram, hence why people often write d/Deaf rather than just deaf or just Deaf.
I think it is always important to recognize that no group is a monolith and there is going to be a breadth of opinion in all forms of advocacy. I am autistic myself and personally don’t really have a strong opinion at this point about whether or not ASD “is” a disability. There are certainly aspects of autism that are just a matter of someone being a little different and society deciding to take issue with that for no good reason, but there are also aspects of autism that actually are disabling — and autism being a spectrum, I think that some people will naturally understand themselves more in terms of the non-disabling but still pathologized aspects of autism, and others will understand themselves more in the disabling aspects. So the relevant question is maybe less “Is autism a disability?” and more “When is autism a disability?”, those are my two kopeks.
Thanks for your input, I agree. I actually do have reasoning why I don’t want to be deaf. It’s my AuDHD. I think I’m the auditory equivalent of hyperlexic. I can process very fast words and stuff and I have constant internal and external echolalia. Music is always playing in my head and I make a lot of noises and stuff. Hearing is like my most important sense. Podcasts and music are huge coping mechanisms. When I’m understimulated the only thing that can make me feel ok is simultaneously physical activity and music. I don’t think I could survive a world without headphones. I also need to multitask while I listen to people. It would be an interesting experience but I suspect were I deaf I would simply be understimulated all the time. I’m really curious what that would do for echolalia.
I think that some people will naturally understand themselves more in terms of the non-disabling but still pathologized aspects of autism, and others will understand themselves more in the disabling aspects.
I’m the type to tend to the former and even thinking like I’m superior, but given further thought I notice all the many accommodations I’m lucky to have, and how much I’ve struggled and the problems I still face. Thinking about it dialectically, it’s a plain truth that comparing any two things there will be relative positive and negative aspects, and even those aren’t isolated. I don’t wish I was neurotypical, but I can’t say I’m not disabled. At the end of the day, “disabled” is a sort of excuse that is helpful for getting people the help they need.
I could write a lot more thoughts, but since it’s late and I’ve got stuff to do tomorrow, I’d rather just give you a few specific questions to reflect on:
If you were to become deaf in the future, how likely would it be that the deafness would be absolute and constant?
Are there situations other than becoming deaf that would lead you to losing access to these things you value?
Are the things you value as a hearing person truly as inaccessible for d/Deaf people as you think they are?
I have no idea what being deaf would actually be like. If it’s partial I’m already used to finding difficulty hearing things sometimes, so I imagine it would be a bit like my experience with derealization.
Yeah, if shit hits the fan and I don’t have music or the internet that would suck. Also, I could dissociate again. I could be put in a situation forced to mask and “pay attention.”
I mean it does seem like it would be harder to multitask and absorb information. Of course books are things, but my ADHD doesn’t like that I’m an average reader.
I must admit that deafness would have some personal upsides too. I could focus without paying attention to annoying sounds. I could just get stimulants and be fine. My other senses would get more stimulating. Not sure what the echolalia would do or if I could make noises without knowing if it was at a volume people could hear. Suppose I could sign words to stim.
I’d never really thought about going deaf before, thank you. I do stand by the statement that it is a “disability” because it makes certain things harder and requires accommodations, but I don’t pity the deaf.
I have no idea what being deaf would actually be like.
There’s plenty of resources out there if you ever become curious about how Deaf people live, accessibility for Deaf people, or what Deaf culture is like or how it intersects with this or that. I try to share the interesting things I stumble upon, I even suggested making a /c/deaf here on Hexbear and this suggestion was met well — but it seems like progress on making that community a reality has stalled, unfortunately.
Suppose I could sign words to stim.
I already now stim by fingerspelling random words or phrases I hear or see or that pop into my head, so you don’t need to be Deaf to do this, necessarily. For me I find this is a nice way to quench the urge of vocal stims without being too noisy, and I get to practice fingerspelling to boot.
Deaf people do generally place some limits on how hearing people can use sign languages, but I don’t think what I’m doing with my stimming is a faux pas, necessarily. I’ve only heard Deaf people complain about things that are really pretty obvious like “don’t teach a sign language if it’s not your first language”, “don’t interpret without a certification”, and “don’t give yourself a sign name, nor beg Deaf people to give you one” — or, I say these things are “obvious”, but there are still myriad criminally unqualified hearies teaching broken sign, myriad Thamsanqa Jantjies going “HELLO CIRCLE SMOKING doaisjdasfnadaskda CIRCLE SMOKING HELLO SMOKING HELLO CIRCLE aduhuasdanssz”, and myriad hearies being exactly as annoying to Deaf people about getting a sign name, as they probably also are to Natives about getting a “sacred indigenous spiritual name, preferably something to do with hawks or eagles because they’re cool”.
I’d never really thought about going deaf before, thank you.
Most people don’t, but I do think it is something that’s worth thinking about more often. I think that Deaf people are often kind of neglected in leftist spaces, and I think this is a shame, because Deaf people have a lot of struggles that should be fought for in solidarity by hearing people, and that hearing people of different marginalized groups can see themselves in and learn from. I think that a part of remedying the lack of awareness or consideration for Deaf people might be for people to better understand that anyone can become deaf, and that you might’ve even met a Deaf person before without realizing — I myself met a Deaf woman who I didn’t realize was Deaf literally for months, despite seeing her basically every day, because she fully hid her CI behind her hair and she didn’t open up to anyone about being Deaf for fear of the hearies being weird about it. I learned my lesson then and there that even if I had unlearned the “cishet is default” attitude, that I still had not unlearned the equally harmful “hearing is default” attitude. Audist society is set up in such a way that for the hearing, the Deaf are “out of sight, out of mind” — that is, like many other marginalized groups, the Deaf are turned into a one-or-two-sentence abstract concept to be at most debated between members of the hegemonic group, or more often wholly unacknowledged. This is my thought, and this is why it’s important to fight against the “hearing is default” attitude and the thought patterns this attitude manifests as.
Because they could have societies composed of nothing but those with the condition and then the problems they encounter go away. For example, if everything was designed without sound, you wouldn’t have issues like not noticing an alarm or needing subtitles on movies. This isn’t the case for quadriplegics.
Sign languages also have their own cultures built around them. There’s people who wouldn’t trade that for anything, in the same way anyone else wouldn’t want to give up their first language. For the deaf, being amongst the non-deaf is like being in a foreign country.
Anywho, there’s some neat stuff to find if you look into deafness groups. I do not know if there are neurodivergent communities living together, only that it’s been talked about.
Lol, I’m aware of the argument. Rather arbitrary and idealist. Anyway, sure deaf people can live together, but by definition they are disabled. They lack the ability to hear.
For neurodivergence, I’ve seen multiple people that were like “I’m not disabled? I literally get overwhelmed by touching a bit of grass or feeling sun on me.” Sure they can have shoes on and stay inside, but some of us also can’t stand shoes and love touching grass. I’ve spent a lot of time in very neurodivergent spaces, and it’s still a lot. As an AuDHDer most ADHDers overwhelm me, and I’m too much for most autists. Even in an ND utopia we’d all have to have lots of education and meds and hyper specific accommodations.
nonsense edit
Elaborating on critique of the model, why should our standard be “everything would be fine if [group] just lived with each other and made their own rules?” This is a terrible equivalency, but “Racist white people arent deficient in anything, they just belong in “whites only” places.” Idk, I don’t want to sound ablist, just critiquing idealism. My point isn’t aspie=nazi, but that we’re all human and different and we need to understand each other and seek accommodations, not isolate.
Of course all debate around language (“disabled”) is bound to be idealist, idk.
Ultimately a reasonable criterion is what do these groups themselves want to be called? I’m not in the blind community but I know lot of NDs consider themselves disabled.
Agreed… disability is a biologically relative term, not socially relative. A society which fully accommodates deafness would not actually abolish deafness.
Someone I know has a hearing disability. It’s not like they are unable to survive without me, but hearing would absolutely make them safer at times. For example, when walking through a dangerous part of town, there is a reason hearing people don’t wear headphones. In nature, it’s a good thing if you can hear rattlesnakes or idk, a bear charing at you lol.
Does that mean a deaf person cannot live a life as rich as a hearing person? I don’t believe that at all. Like said above, there can be certain subjective upsides to deafness that might balance the losses. But it’s still a disability.
Unfortunately, that’s a common thing I’ve run across in every marginalized community. I find it tends to go hand in hand with that whole ‘if education is not liberating than the dreams of the oppressed is to become the oppressor’ quote.
Yeah, I keep trying to impress on the Covid Conscious folks that this abandonment they’re experiencing is nothing new and they should be seeking solidarity with and learning from the communities who have been dealing with this long before them. Not having a lot of luck.😅
I feel this. There are also a lot of people, both temporarily and permanently disabled, who have just never thought of themselves as disabled and will get very upset if you imply otherwise. I’ve had that experience talking to people about long covid. It’s frustrating.
I have bouquet of hidden disabilities, which don’t in and of themselves prevent me from socially useful labor. But they do impact my ability to work to surplus consistently, and my ability to be a palatable job applicant to a capitalist firm. The violence of capitalism is far and above my primary disability, vastly overshadowing any issues intrinsic to the differences in my body. And it will come for all the “health” chauvinists.
I made it to adulthood before becoming disabled and I immediately began milking that shit. Oh your store isn’t ADA compliant? I’ll totally run things over and knock shit off shelves and dare some petty bourgeois small business owner fuck to do something. I’d key people’s cars who park in handicap spots but I know sometimes people forget, not all disabilities are visible, and people put their sticker in the glove box when it’s not in use.
The two groups of people who don’t necessarily have a disability but are seen by others as disabled are the deaf and neurodivergent.
Why? My hearing is extremely important to me and I can’t imagine what I’d do without it. Sure, people can have fine lives without that sense, but it’s not non-disabling. Neurodivergence can have plenty of upsides but executive dysfunction, time blindness, stimulation needs, interoceptive difficulties, social difficulties etc are definitely disabling. While life under capitalism is bad for everyone, society was especially not made for us.
There are a lot of hearing people who say this, I believe that Deaf people actually see this type of utterance as an incredibly, outright tediously cliché thing to say… Yet I wonder how many hearing people have actually taken the time to really think about why hearing is important to them personally, and actually attempted to imagine what they would do without their hearing, as opposed to just saying “I can’t imagine” upfront. Now this is obviously not to say that there is anything wrong with valuing one’s own hearing, I’m not exactly going around blasting airhorns into my ears 24/7 desperately trying to make myself deaf — but it is just a fact that a lot of hearing people go around with audist brainworms, that make them not think about d/Deafness soberly, as it were.
If I were to lose my own hearing I honestly think I’d gain just as much as I’d lose — Deaf people actually have a term for this I know, “Deaf Gain” they say.
This being said, obviously there are some number of d/Deaf people who think of (their own) deafness as a disability, just as there are neurodivergent people who think of (their own) neurodivergence as a disability. What sets Deafness apart as a cultural identity separate from disability is the shared history, the passed-down stories and values and traditions, and the languages unique to Deaf people, that make them advocate for themselves as a language minority — but cultural Deafness and medical deafness do not form a perfectly circular Venn diagram, hence why people often write d/Deaf rather than just deaf or just Deaf.
I think it is always important to recognize that no group is a monolith and there is going to be a breadth of opinion in all forms of advocacy. I am autistic myself and personally don’t really have a strong opinion at this point about whether or not ASD “is” a disability. There are certainly aspects of autism that are just a matter of someone being a little different and society deciding to take issue with that for no good reason, but there are also aspects of autism that actually are disabling — and autism being a spectrum, I think that some people will naturally understand themselves more in terms of the non-disabling but still pathologized aspects of autism, and others will understand themselves more in the disabling aspects. So the relevant question is maybe less “Is autism a disability?” and more “When is autism a disability?”, those are my two kopeks.
Thanks for your input, I agree. I actually do have reasoning why I don’t want to be deaf. It’s my AuDHD. I think I’m the auditory equivalent of hyperlexic. I can process very fast words and stuff and I have constant internal and external echolalia. Music is always playing in my head and I make a lot of noises and stuff. Hearing is like my most important sense. Podcasts and music are huge coping mechanisms. When I’m understimulated the only thing that can make me feel ok is simultaneously physical activity and music. I don’t think I could survive a world without headphones. I also need to multitask while I listen to people. It would be an interesting experience but I suspect were I deaf I would simply be understimulated all the time. I’m really curious what that would do for echolalia.
I’m the type to tend to the former and even thinking like I’m superior, but given further thought I notice all the many accommodations I’m lucky to have, and how much I’ve struggled and the problems I still face. Thinking about it dialectically, it’s a plain truth that comparing any two things there will be relative positive and negative aspects, and even those aren’t isolated. I don’t wish I was neurotypical, but I can’t say I’m not disabled. At the end of the day, “disabled” is a sort of excuse that is helpful for getting people the help they need.
I could write a lot more thoughts, but since it’s late and I’ve got stuff to do tomorrow, I’d rather just give you a few specific questions to reflect on:
I have no idea what being deaf would actually be like. If it’s partial I’m already used to finding difficulty hearing things sometimes, so I imagine it would be a bit like my experience with derealization.
Yeah, if shit hits the fan and I don’t have music or the internet that would suck. Also, I could dissociate again. I could be put in a situation forced to mask and “pay attention.”
I mean it does seem like it would be harder to multitask and absorb information. Of course books are things, but my ADHD doesn’t like that I’m an average reader.
I must admit that deafness would have some personal upsides too. I could focus without paying attention to annoying sounds. I could just get stimulants and be fine. My other senses would get more stimulating. Not sure what the echolalia would do or if I could make noises without knowing if it was at a volume people could hear. Suppose I could sign words to stim.
I’d never really thought about going deaf before, thank you. I do stand by the statement that it is a “disability” because it makes certain things harder and requires accommodations, but I don’t pity the deaf.
There’s plenty of resources out there if you ever become curious about how Deaf people live, accessibility for Deaf people, or what Deaf culture is like or how it intersects with this or that. I try to share the interesting things I stumble upon, I even suggested making a /c/deaf here on Hexbear and this suggestion was met well — but it seems like progress on making that community a reality has stalled, unfortunately.
I already now stim by fingerspelling random words or phrases I hear or see or that pop into my head, so you don’t need to be Deaf to do this, necessarily. For me I find this is a nice way to quench the urge of vocal stims without being too noisy, and I get to practice fingerspelling to boot.
Deaf people do generally place some limits on how hearing people can use sign languages, but I don’t think what I’m doing with my stimming is a faux pas, necessarily. I’ve only heard Deaf people complain about things that are really pretty obvious like “don’t teach a sign language if it’s not your first language”, “don’t interpret without a certification”, and “don’t give yourself a sign name, nor beg Deaf people to give you one” — or, I say these things are “obvious”, but there are still myriad criminally unqualified hearies teaching broken sign, myriad Thamsanqa Jantjies going “HELLO CIRCLE SMOKING doaisjdasfnadaskda CIRCLE SMOKING HELLO SMOKING HELLO CIRCLE aduhuasdanssz”, and myriad hearies being exactly as annoying to Deaf people about getting a sign name, as they probably also are to Natives about getting a “sacred indigenous spiritual name, preferably something to do with hawks or eagles because they’re cool”.
Most people don’t, but I do think it is something that’s worth thinking about more often. I think that Deaf people are often kind of neglected in leftist spaces, and I think this is a shame, because Deaf people have a lot of struggles that should be fought for in solidarity by hearing people, and that hearing people of different marginalized groups can see themselves in and learn from. I think that a part of remedying the lack of awareness or consideration for Deaf people might be for people to better understand that anyone can become deaf, and that you might’ve even met a Deaf person before without realizing — I myself met a Deaf woman who I didn’t realize was Deaf literally for months, despite seeing her basically every day, because she fully hid her CI behind her hair and she didn’t open up to anyone about being Deaf for fear of the hearies being weird about it. I learned my lesson then and there that even if I had unlearned the “cishet is default” attitude, that I still had not unlearned the equally harmful “hearing is default” attitude. Audist society is set up in such a way that for the hearing, the Deaf are “out of sight, out of mind” — that is, like many other marginalized groups, the Deaf are turned into a one-or-two-sentence abstract concept to be at most debated between members of the hegemonic group, or more often wholly unacknowledged. This is my thought, and this is why it’s important to fight against the “hearing is default” attitude and the thought patterns this attitude manifests as.
Because they could have societies composed of nothing but those with the condition and then the problems they encounter go away. For example, if everything was designed without sound, you wouldn’t have issues like not noticing an alarm or needing subtitles on movies. This isn’t the case for quadriplegics.
Sign languages also have their own cultures built around them. There’s people who wouldn’t trade that for anything, in the same way anyone else wouldn’t want to give up their first language. For the deaf, being amongst the non-deaf is like being in a foreign country.
Anywho, there’s some neat stuff to find if you look into deafness groups. I do not know if there are neurodivergent communities living together, only that it’s been talked about.
Lol, I’m aware of the argument. Rather arbitrary and idealist. Anyway, sure deaf people can live together, but by definition they are disabled. They lack the ability to hear.
For neurodivergence, I’ve seen multiple people that were like “I’m not disabled? I literally get overwhelmed by touching a bit of grass or feeling sun on me.” Sure they can have shoes on and stay inside, but some of us also can’t stand shoes and love touching grass. I’ve spent a lot of time in very neurodivergent spaces, and it’s still a lot. As an AuDHDer most ADHDers overwhelm me, and I’m too much for most autists. Even in an ND utopia we’d all have to have lots of education and meds and hyper specific accommodations.
nonsense edit
Elaborating on critique of the model, why should our standard be “everything would be fine if [group] just lived with each other and made their own rules?” This is a terrible equivalency, but “Racist white people arent deficient in anything, they just belong in “whites only” places.” Idk, I don’t want to sound ablist, just critiquing idealism. My point isn’t aspie=nazi, but that we’re all human and different and we need to understand each other and seek accommodations, not isolate.
Of course all debate around language (“disabled”) is bound to be idealist, idk.
Ultimately a reasonable criterion is what do these groups themselves want to be called? I’m not in the blind community but I know lot of NDs consider themselves disabled.
Agreed… disability is a biologically relative term, not socially relative. A society which fully accommodates deafness would not actually abolish deafness.
Someone I know has a hearing disability. It’s not like they are unable to survive without me, but hearing would absolutely make them safer at times. For example, when walking through a dangerous part of town, there is a reason hearing people don’t wear headphones. In nature, it’s a good thing if you can hear rattlesnakes or idk, a bear charing at you lol.
Does that mean a deaf person cannot live a life as rich as a hearing person? I don’t believe that at all. Like said above, there can be certain subjective upsides to deafness that might balance the losses. But it’s still a disability.
Unfortunately, that’s a common thing I’ve run across in every marginalized community. I find it tends to go hand in hand with that whole ‘if education is not liberating than the dreams of the oppressed is to become the oppressor’ quote.
Thank you for doing that labor though, comrade. It is fucking brutal how little people care about our disabled folks.